It is quite easy to join. By following this link, you can register by providing your email and creating a password. You will get a confirmation email to verify your email, after which you will provide your consent to participate and then start completing surveys.
There are several benefits for participating in the registry. First, contributing information will help us better understand the reasons for higher cancer risk among firefighters. The information will generate new knowledge to inform ways to prevent cancer among current and former firefighters. Additionally, the findings could help inform state and regional legislators to implement policies and devote resources to benefit firefighters across Virginia.
The overall goal of the Virginia Firefighters for Lifelong Health Registry (VA-FLH) is to generate data that can inform state-wide strategic planning, allocation of resources, and strategies for cancer prevention among current and former firefighters in Virginia. The specific objectives include: 1) characterize the demographics, lifestyles, risk factors, and health status of firefighters who enroll in the VA-FLH; 2) develop ways to improve health and promote cancer prevention among current and former firefighters in Virginia; 3) support long-term health promotion and cancer prevention among Virginia firefighters and their families through interactive communication, networking and data collection from registry participants.
If you agree to participate in the registry, your participation will be indefinite as we will conduct several follow-up studies over the next few years. Each year we will ask you to renew your consent, but you can withdraw participation at any time by emailing the study team at email@example.com. You may also just complete the registry survey, but not opt-in to being contacted for future research studies.
While individual test results are not made available, we will share information through reports that aggregate the data. As results emerge, summary of the findings will be posted on the participant website and can be made at request by emailing the study team at firstname.lastname@example.org.
The survey will ask information about your work, health, lifestyle, and behavior. Examples of work questions include departmental and job title history and work practices, such as wearing protective gear. Examples of health information includes your physical health such as chronic disease diagnosis and perceived well-being. Examples of lifestyle behaviors include tobacco and alcohol use, exercise, and sleep. Your individual results will never be shared or presented with anyone, including fire department management. Any report will only include aggregated (combined) results. Optionally, you can also share your medical records alongside completing the survey.
Yes. Participants will be allowed to withdraw their data up to the point of withdrawal, provided that no analyses have been conducted. In the case that analyses have been conducted, data collected from participants will remain in the database in order for the study to be scientifically valid. To withdraw, please email the study team: email@example.com
The study is being sponsored by the Massey Cancer Center.We have been working closely with the Virginia chapter of the Firefighter Cancer Support Network (FCNS) in the development and implementation of this registry.
In any study there will always be risks associated with a data breach or loss of protected information. We will maintain the highest security protocols possible for collecting and storing electronic data. We will keep all data confidential and restrict access to only those involved in the study or other approved researchers. Any shared data will be coded so that no identifiers (such as name, email, etc.) are included in the dataset. Only summaries of the data (not individual data) will be shared for the purpose of communicating findings.